At the ripe age of 63, the idea of restricting my pithy thoughts to 140 characters to Tweet seemed so odd that I didn't think it could matter to me or anyone else. I had no idea what a hash tag was or how to set up an account (my daughter did it for me.) Yet in the last 6 weeks since my Indiegogo campaign was launched and I have done some tweeting, I have learned that people spend so much time online, they do like to get a taste of a subject in those few characters and decide if they want to dive deeper into the subject. Actually kind of makes sense. As my first attempt at crowd source funding project comes to a close, I have followers with thousands of fellow tweeters and I have learned a lot more about what is out there than I ever conceived or dreamed of. Resources, interesting stories, connection points, and points of view.
On the other hand, it seems to me that blogging is a kind of "thinking out loud" about a subject, whether or not it's directly relevant to any project at hand and without the character or space restrictions. Everything is so much better explored with more words and letters to people like me - in the process of writing a book about my personal journey with breast cancer. I have found that there are already a lot of books out there about people and their cancer journeys - many specifically about breast cancer. My daughter and her husband were absolutely convinced that my story is unusual in that I have done virtually nothing that I was "supposed" to do by traditional medicine standards. In that regard, I do think what I have done is very different, but not sure what message that will deliver in the positive light I have in mind.
On the one hand, I am here 8+ years after diagnosis, feeling well, but a slave to a lot of health protocols to keep the cancer at bay and my immune system on fire. That's great, of course, but my needle phobia, distaste for the very negative messages I got when I went to regular doctors, and having no health insurance for some of the time has put me in a place where I don't have a lot of numbers and test results to which I can refer in a scientific way as I report on what I have done. That lack of information might daunt some people if they were in my shoes, but feeling great doesn't make me feel like I have "needed" to know more than that.
So, as I consider changing or adding a nontoxic protocol now, I feel like it's time to become more measured about what is going on so I can really tell about the efficacy of what I am doing. An ultrasound and some blood work are in order. Now I just have to find out where I stand in the Obamacare system and my eligibility to get them. Stay tuned.
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